A major characteristic of Dravet Syndrome(SME) is that there are many types of seizures. Also, when a seizure begins, sometimes it takes more than 2~3 hours, therefore many children who have experienced stop breathing. And it may be caused of encephalopathy and happen to the even death.
And, there are many features which trigger seizures in daily life, such as bathing, sunlight filtering through the trees, polka dot pattern, striped pattern etc. It is hard to eliminate these factors in daily life.
This disease happens to the one child per 40,000 people, and it was designated for child-specific diseases in 2005 and also designated for incurable in 2014.